A Positive Visit to Childrens Hospital Boston
Well, Charlie Girl and Jimmy are home and Rocco and I are thrilled to have them back!!! I flooded her with kisses, after she woke up of course. They stayed for only 3 days, and luckily they had a private room so they didn't have to worry about a roommate keeping either of them awake. From what Jimmy told me, everything went fairly smoothly and without complications. We will be setting up a follow-up appointment to get the full narrative of the EEG. I felt so empty without them both! Now that Charlie Girl is on the PediaSure, she's going to gain some weight, we hope. She is now FINALLY over 20.4 Pounds! I am so happy for her!Here is a photo that Jimmy took with his phone while they were still in the hospital. His caption to go with the photo was "I Miss My Mommy!"
How sweet is that face?!?! She's My AnGeL!
To be continued...
Today, Charlie is going for her Electroencephalograms (EEG or Brain Wave Tests). This will take place over the next 24 to 48 hours. If you take a look at the link above, this will bring you to the Children's Hospital Boston website where it explains what this test is all about. In abbreviated terms, this test will monitor her seizures. They adhere little metal conductors to her head and from there, the parent present presses a button each time he or she recognizes a seizure. This is a long but necessary procedure. While she is there, I set up to have the GI-Team come by and check on her tube that they recently changed. Unfortunately, in speaking with Dr. Fishman, I fear that she will need to have the 'stomach twisting' procedure done since she still shows signs of reflux. But, one step at a time!This time, Jimmy has gone with his baby girl. I am at work. I am handling this okay for now but when I get home to our puppy Rocco and no Charlie Girl, it might be a different story! Since Jimmy is going to CA in June, I need to save my time so that I can take time off to care for Charlie Girl. I am scared about taking care of her by myself for that long but I am sure I can do it!Some people have referred to me as "Super Mom", but I don't see myself as that. I am just a mom caring for her daughter. As I will continue to do until she decides otherwise...To be continued...
So, if ANYONE knows me then they know that The Who's "TOMMY" is one of my favorite Broadway shows EVER! Well, Mount Wachussett Community Theatre is taking on the task of putting on the production of the Rock Opera Tommy and I want to audition for it. I stayed up late lastnight contenplating whether or not I should. What about Charlie?? What about Jimmy?? Will they resent me for being away from home that much on the designated rehearsal nights?? Will I be neglecting Charlie?? Will she even know that I am not home?? Will she and Jimmy be able to feel how happy I am being on stage again??
Jimmy gave me his blessing! That means so much to me! Performing on stage is one of my true loves in this world. I miss it! I miss being a part of a production that touches people (in a good way of course, well, except for the character of Uncle Ernie but that's a whole other blog).
I would love to play Mrs. Walker! She is a strong Mother who never gives up on her child. She stays strong for her son and her husband. This is the role that I have been wanting and waiting to play since I saw the play 9 times (Yes, 9 times... I know) on Broadway back between 1993 and 1994! And honestly, I believe I have enough experience now to play that role. I believe I can bring a certain knowledge and truth to that role.
I am seriously thinking about auditioning, which would take place at the end of this month! You know, it's so ironic how this story is about a deaf, dumb (I think it should be mute and not dumb. I don't like the insinuations behind that word!) and blind child. Strange huh? There are a few lines during one of the songs on the Soundtrack where Mr. & Mrs. Walker sing the following: "I often wonder what he is feeling. Has he ever heard a word I've said? Look at him in the mirror dreaming, what is happening in his head?" and "What is happening in his head... Oh... I wish I knew... I wish I knew" That is how I feel about my Charlie Girl...
To be continued...
Another Year...
Today, my husband and I are celebrating our 9 Year Anniversary! I am happy that we have made it through the hard times because I do love him. He is my life... I can picture us sitting on our porch, on our rocking chairs discussing how our grandchildren are laughing at the video game systems that we used to use. I can see myself being old but still beautiful in his eyes. And I can see Jimmy being the same man I married so long ago. He is the love of my life!To be continued...
Well, Charlie Girl and Jimmy are home and Rocco and I are thrilled to have them back!!! I flooded her with kisses, after she woke up of course. They stayed for only 3 days, and luckily they had a private room so they didn't have to worry about a roommate keeping either of them awake. From what Jimmy told me, everything went fairly smoothly and without complications. We will be setting up a follow-up appointment to get the full narrative of the EEG. I felt so empty without them both! Now that Charlie Girl is on the PediaSure, she's going to gain some weight, we hope. She is now FINALLY over 20.4 Pounds! I am so happy for her!
